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Another look at the challenging nature of diagnosing Ehlers-Danlos

April 9, 2014

From Dr. Mitakides:  Those familiar with Ehlers-Danlos know how challenging it is to finally arrive at a diagnosis:  the disease isn’t easily recognized because of the wide variety of symptoms it often presents.  It has been said that EDS isn’t a rare disease, it is a rare diagnosis.  This recent article profiles one EDS patient, and although no two patients have the same progression or set of symptoms, this article is of interest because it actually focuses on EDS.  There is much that can be done that is not surgical, and the right treatment varies depending on the patient, but the fact that the Washington Post devoted space to EDS is encouraging.  I have been excited to work as part of the Professional Advisory Network of the Ehlers-Danlos National Foundation, and as part of  a team of physicians who are providing life-changing help for EDS patients.  I thought you might find this interesting reading: